Managing my MG Symptoms: A Holistic Approach

When I was first diagnosed with MG, I remember my neurologist telling me how he'd just put me on Mestinon and I'd feel "much, much better". But I didn't. In fact, even on the smallest dose, my symptoms got worse - so bad that I couldn't dress myself, drive, or breathe properly. His next suggestion…

Thymectomy: Looking Back From Afar

I had my thymectomy in October of last year. Initially, the plan was to blog about the procedure and progress from the hospital, to document every step along the way. Yeah, all plans went to hell with that. The surgery and its aftermath was quite certainly the worst experience of my life. Nothing prepared me for it.…

Two Months Keto: My Experience So Far

Today marks the 2-month anniversary of my ketogenic journey and, let me tell you, it hasn't been easy! As I've mentioned before, I started looking into ketogenic diets because of their effectiveness in treating other neurological ailments (like Alzheimer's and epilepsy), and because I wasn't finding relief on a nutrient-dense paleo diet (AIP, Wahls Levels…

Indonesia Trip Part II: Gili Meno

Nusa Lembongan was such a perfect little island, that, quite frankly, I didn't think the Gilis would be able to top it. Sure, they were high on every "must-visit" list for Bali and Lombok, but I was worried that they would be a little too crowded, a little too busy, a little too polished. While most guides insisted…

Indonesia trip part I: Nusa Lembongan

Because I scuba-dive, almost all of my vacations are spent near the ocean. Traditionally, I've been choosing destinations based on water temperature (MG makes it hard to dive in cold water) and reputation of dive sites, with little regard for anything else (well, except for cost!). This type of thinking got me to the Cayman Islands, the Bahamas…

Review: maoMeno Resort, Gili Meno, Indonesia

I was planning a last minute trip to Indonesia and booked a 3-night stay at maoMeno Resort in a rush. It looked beautiful on paper: rustic, bohemian and chic, with optional yoga classes twice a day and an appealing smoothie and whole foods bar. But the reviews on Booking.com were mixed and rightly so, as it…

Getting Diagnosed with MG

My autoimmune journey started during the summer of 2015, when I was diagnosed with myasthenia gravis (MG). I’d been having symptoms for over two years but nobody suspected MG. I went to three different neurologists, one optometrist, one ophthalmologist, one psychologist and one psychiatrist; everyone thought it was psychosomatic. By the time I was diagnosed,…